She Said the Thing

The truth of chronic illness

This past week, I had what I thought was going to be a routine session with my acupuncturist and Traditional Chinese Medicine practitioner. It ended up everything but routine as that morning ended up being “one of my bad days” with unexpected and anxiety provoking symptoms. The acupuncture treatment helped ease the symptoms and Megan gave me instructions to follow up with my primary care doctor “just in case” there is more that needs to be explored. (My primary care and I are currently exploring a possible thyroid issue.)

It wasn’t this that made this week’s session remarkable, however, it was the thing Megan said. I’m not going to be able to repeat it verbatim but it was the exact acknowledgement that I needed to hear. In her compassionate seeing, Megan recognized the very real fact that most of the time, I feel like shit. Following that up with the masking that I do to make it through each day despite feeling like shit. I took Megan’s hand in mine and through tears, thanked her for SEEING ME.

Because this is the reality, I do feel like shit pretty much every day. Between Epstein-Barr, permanent vestibular neuritis, panic attack disorder, being a highly sensitive person, neurodivergent, and having polycystic kidney disease, my baseline is somewhere around 50-60%.  I’m tired and cold all the time. I’m always suffering some version of mild vertigo (giddiness). My chronic headaches have been better, but as I write I’m on day 6 of a constant dull ache. I’m on all the medications to manage my kidney disease, and every one comes with their own set of side effects. Ugh.

I don’t write this in search of pity. I share this to reveal the whole truth about chronic illness and to point out that we live in a world that has no real support for the chronically ill. Instead, we’re forced to put on a happy face, go out into the world, work to earn money to pay our bills, grocery shop, exercise, stay fit, eat right, and not complain about the fact that while we are doing all these things to make it in this world, we often feel like complete shit. Pushing through the pain, fatigue, etc. then just makes us feel worse.

The chronically ill are invisible in our world; and yet we make up 60-90% of the American population. This means that every day, 60-90% of the people we encounter are feeling like complete shit while trying to complete the tasks required of them in a capitalistic culture. Other than disability income (which very few qualify for), there are no safety nets. Zero. Zilch. Nadda.

I can’t speak for others who suffer with chronic illness, but for me, I’ve carved out a way to make a living that (somewhat) accommodates for my vulnerabilities. At the same time, it is a constant effort to show up for work. I’m fortunate to have clients who understand if I have to miss a day or reschedule.  Making this choice, however, costs me in real US dollars so I reserve that right only on my worst days. Often I show up even when feeling like I really just need to stay home and do nothing or sleep. I’m also grateful for the unexpected and often miraculous ways that financial support shows up, allowing me to be more gentle, compassionate, and caring toward my fragile body.

And today, I’m especially grateful to Megan Bartelt, L.Ac. Dipl. Ac. for through her words, I am finally feeling seen. 

The Effects of Trauma

Trauma is weird. Trauma is weird because we don’t always know we’re experiencing trauma until its effects accumulate and begin to come out sideways. Trauma is also weird because every person experiences trauma differently.  Some traumas are obvious and expected, others are not. If you are in a war zone and having to deal with constant life-threatening situations, you would expect that you might experience some adverse effects from that trauma. Some people, however, seemingly don’t. If you are in a physically abusive marriage or suffered sexual assault, you would expect to suffer the effects of these traumas. One does not necessarily expect disappointment, heartbreak, loss, or betrayal to be experienced as trauma – but for some they are.

Trauma is weird. My trauma is not from war or physical abuse. What I can now identify as the traumas that eventually led to a diagnosis of CPTSD (Complex Post Traumatic Stress Disorder), I did not necessarily think of them as traumatic at the time. I’m a strong, independent woman and that’s how I got through those traumas – truly by sheer force of will and stubbornness – mixed in with a good dose of resentment. I made myself survive.  I forced myself to weather the storm. I pushed myself through it all – never attending to the deep heartbreak I was feeling because at the time I was just trying not to collapse under the weight of it all.

Well….eventually that all caught up to me. All that forcing did was push the trauma deeper and deeper into my psyche where it built up and accumulated until it started coming out in symptoms of depression, anxiety, hypervigilance, and eventually full-blown and traumatic panic attacks. I’m also convinced that all of this pent up trauma is what made me vulnerable to the bizarre ear infection that permanently damaged my vestibular nerve – causing my now ongoing issues with vertigo, etc. which now prevents me from driving any distance without great effort and no longer allows me to drive on the freeway – dramatically hindering my previously taken for granted freedom of mobility.

Trauma is weird. I have tried to explain my trauma in the past and to those listening, it just doesn’t make sense. It doesn’t really make sense to me either. I can point to the situations, experiences, individuals and say – “it’s their fault.” But really, my trauma is less about fault and more about cause. The cause, if I’m truly honest with myself, was LOVE, and the trauma that one experiences when that love is betrayed.

That’s it in a nutshell. Every trauma I’ve experienced has ultimately been about the betrayal of love.

The easiest for me to speak about is my ecclesial trauma because in this case, there are no innocent bystanders who might be hurt by my words. I feel perhaps I’ve written of this ad nauseum, but in a nutshell – I once passionately and deeply loved the Church and the mission of Love I embraced on their behalf. I found my calling in the Church. I was enthusiastically supported in that calling, both financially and otherwise by the Church. I had planned to continue my formation and advancement in Church ministry as far as would be allowed for a woman. Then I wasn’t. All because I took Jesus’ call to Love seriously and accepted that call to heal and teach. It’s a long stupid story and on the outside to call this trauma might seem trite, but I can honestly attest that leaving the Church was harder for me than divorce and the trauma I suffered that ultimately led to my leaving is the greatest heartbreak I have ever experienced. My Church turned its back on me. If you understand the nature of spiritual abuse, you get it.

The other traumas I will continue to hold close to my heart. Suffice it to say, all were deep and indelible betrayals of love. When trauma is a result of betrayal, it becomes personal – and that’s a whole different kind of trauma – which is why it’s so difficult to describe and even more challenging to explain. It’s not as a result of a hit, a punch, or war, it because of a broken heart.  

No matter the cause of the trauma, the effects are mostly the same: anxiety, depression, panic attacks, chronic illness, hypervigilance, memory issues, situational avoidance, disassociation, feelings of overwhelm and cognitive impairment, auditory and visual processing disorders, chronic pain, and so much more. There are medications and therapies that help mitigate the effects of trauma, but in my experience, the effects never fully go away and are always lying in wait to rear their ugly head again – like recently. For whatever reason, my trauma decided to rear its ugly head causing ongoing increased anxiety and breakthrough panic. Whatever I had been doing proved to be no longer enough so now I’m (by doctor’s orders) taking a break from external stimuli, adjusting to an increase in medication, and looking at what other lifestyle changes or adaptations I need to take to continue to care for my trauma-affected mind, spirit, and body.

As an aside, I’m profoundly grateful to my employer who allows for accommodations so that I can continue to work and make a living. AND there are not enough supports in our system for people who have suffered the effects of trauma. For many, work is literally impossible and for the majority, there are not enough accommodations available to help them be part of providing for their basic needs without doing further damage to themselves. If my nervous system had its way, I’d be living in a cabin deep in the woods and all my needs would be provided for so I could just take care of myself, living as gently and quietly and softly as I need. Just sayin!

Why Bother?

examining the blurred line between surrender and depression

This title, Why Bother, even describes how I’m feeling in this moment as I attempt to put these thoughts in writing. On one hand I’m sick to death of my own inner voice. On the other hand, I know I have friends, colleagues, clients and students who might share these sentiments. Is this just what happens as we approach our sixties or is there something more afoot?

In short (who am I kidding, I’m never short with my words), I have arrived at a place in my life where daily I’m faced with the question, “Why Bother?” while also acknowledging a deep sense of letting go combined with an even deeper sense of surrendering to what is (or what seems to be). Some might call it acceptance. Others might accuse me of being depressed. Yes? No? Maybe so? Does it even matter what we call it when it just simply is?

For the vast majority of my almost sixty years, I have worked my butt off!  As a child, I pursued academics with two specific goals in mind: to become class valedictorian and to get into the college of my choice where I would pursue Engineering just like my dad. In the end, I achieved neither, but I worked hard in pursuit of those goals. In college I did the same. I worked hard, studied, hard, all with an end-goal in mind – get a good job that makes lots of money. Again, none of these goals panned out, but not for lack of trying.

Somewhere around 1994, I experienced a profound change of direction and found myself called into what I believed to be my life purpose and mission. I pushed myself in my studies. I developed opportunities to put my learning into actions. I gained respect in my field and eventually landed a job that I planned to pursue to the highest rank possible for a woman working in the Church – Parish Director. As these goals began to bear fruit, the rug was violently pulled out from under me and I found myself again, on another path.

We plan and God laughs!

Before going on about career stuff, I must also acknowledge my marriage. I had a vision. I had goals. I worked my ever-loving ass off to make the impossible succeed. I did not fail -but the marriage did. Again, not for lack of trying!

Then there’s my kids – yeah – I won at that. No, it’s not a contest, but I can confidently acknowledge the role I played in supporting my children in being the absolute best versions of themselves as they could possibly be. No, I wasn’t perfect. I sometimes lost my temper. I occasionally yelled at my kids. My anxiety often got the best of me. I’m sure they are carrying around conditioned thoughts or behaviors influenced by my own unhealed wounds. BUT, I look at them today and I could not be more proud – of them, and myself for my attempts at loving them into being who they are today. In this I can say I succeeded.

Back to the career stuff – without boring you with the details about which I’m sick of speaking – I worked hard, really hard, at what I understood to be my mission and purpose, and worked even more vigorously at it after the Church rug got pulled out from beneath me. I pursued further education. I voraciously consumed books on personal development, grief, and shadow work, etc. all while building, promoting, and managing my own business offering resources and support for individual self-actualization.

  • I wrote and published books. Eleven to be exact.
  • I created and facilitated over 30 courses in personal development – both in-person and eventually online.
  • I worked with countless students and clients who felt called to pursue their own inner work.
  • I networked with and collaborated with other people in the field in support of our shared mutual growth.
  • I penned thousands of blog posts to support the visibility of my work and to educate and inspire readers.
  • I wrote for myself and was guest writer for many online and hard-copy publications.
  • I put SEO practice into my work.
  • I did what I was told to do by various so-called experts.
  • I gathered a strategic team to help support a necessary rebranding.
  • Speaking of rebranding – I’ve done that too many times to mention.
  • I believed in the promises offered to me by influential people in the field to “help make my business successful.”

Since 2003, I have done all this. I’m grateful for all those who received from the gifts I shared in the world. I acknowledge the benefit my sharing has been for many. I’m humbled by the relationships that have blossomed out of the simple act of me sharing myself in the world.

Yes, great good has come from thirty years of pursuit. And yet, I have nothing of a material nature to show for all my hard work. I have zero savings. No investments. I own nothing but my car and the contents of my apartment. To heap on additional frustration, as of 2020, my work, my passion, my mission, my business has all but died. Yes, there have been a few new students and clients popping up from time to time along with the return of those with whom I hadn’t work in years. But for the most part – not much to nothing has been happening.

At some point in the last several years, I have been forced to increasingly acknowledge that what I thought was my mission and purpose is over. It’s complete. Perhaps all I pursued was simply for my own sake and those clients and students were only along for the ride (as one of my Zen friends reminds, “We’re all just here in our own sit.”) I sometimes wonder if the search for and pursuit of meaning and purpose is simply an illusion that feeds our big fat egos.

But I’m really good at what I do/did.  There was a passion that drove me. My gifts became enlivened and additional gifts were discovered, cultivated, and shared. St. Paul says this is what we should be doing – using our own unique gifts in support of the mission of love. I’ve done all that.

And yet…..and yet…..what do we do when there is nothing left? No one coming forth to receive our gifts. No inspiration to create anything new. No energy or excitement about diving back in to try reviving that which is already dead.

I got nothing. I’m spent. I have nothing more inside of me to promote, advertise, or feed my business – and at this point I wonder, “Why bother?” I’ve done all I can. Perhaps it’s lived out its life and that life has come to an end. Maybe it’s time to hand the baton to the young ones who still have the energy to start a new life.

I do not. I’m done pushing that boulder up the hill only to have it roll back down over my own dying body. I’m tired. I’m spent. One some days I feel defeated, but mostly I feel resigned. In spite of all my efforts, nothing can reverse the direction of a dying tide. It is what it is. I did what I felt called to do. I ministered to those who found their way to me. I gave my best effort and brought my best self forth. Some enjoyed the benefits of my sharing. Others found their way to another path. Some gave up the work for reasons I can only guess. Some turned away because it was easier to blame me than to face their own demons and do the deep inner work of personal healing and transformation. And I was there for it all.

So what happens now? I have a part-time job that has its frustrations but at least it helps me to pay the bills. Beyond that, I’m not sure I care. Not because I’m depressed, but because if there is one thing I’ve learned in the 59+ year journey is that WE ARE NOT IN CHARGE! Some other force is driving the boat and we can either exhaust ourselves fighting against it or go along for the ride. At almost sixty, I’m choosing to go along for the ride because any other choice is futile. This is where the “Why bother” comes in. In going along for the ride (surrendering/accepting), there’s nothing left to do, only something to be. The something I choose to be is peaceful, living with ease, gently, lovingly, and with kindness toward myself and others – or as one friend recently shared: “There is nothing more to do other than to be that which cannot be seen,” which as it turns out might just be a fancy way of saying, “Why bother?”

Melancholy

There is a kind of melancholy
that inhabits a woman of a certain age.
Like a cloak of kelp and arame draped across her shoulders –
Clinging and dripping,
Enfolding her in saline dampness.
Salty, cold, and wet from a lifetime of tears –
Some shed. Some withheld.
Sorrow-ridden tears of loss.
Bitter tears of betrayal.
Volcanic tears of rage.
All comingled with fleeting tears of joy.

A woman’s heart is tender –
despite the strength she must show to the world.

Melancholy creeps in like mist through a crack in the door
filling every space with a weightless veil
carrying all the pain of the world.
She barely sees its coming
until realizing it’s here.
Impenetrable.
Eternal.
It’s made a home in her.

Initially unwelcome –
something that must be expunged.
But the more it’s met with resistance
the louder its cries become.
Until the moment she accepts melancholy’s heavy wrap,
there she discovers not pain but comfort.

Melancholy is neither curse, nor depression to be shunned.
Instead, melancholy is the acknowledgment of all a woman has held on her own –
the cloak of comfort she could not give to herself and what she didn’t receive from the world.

Illness Designating Power

Our whole lives we’ve been told that illness means there’s something wrong with us.  What if the reverse, in fact, is true?  What if illness is a gift that designates our power? Can we take what we’ve been told and have chosen to believe and turn it on its head? What if what we’ve been calling illness (chronic illness especially) is really the body’s only way, in an upside-down world, to create the environment the Soul needs to thrive?  What if chronic illness is the body responding to abuse of the Soul?  What if when suffering chronic illness (ie: fibromyalgia, chronic fatigue, Epstein-Barr, migraine, vestibular disorders, anxiety, depression, panic attacks) there’s nothing wrong with us but is our body pointing out everything that is wrong with our world? What can we learn about our Soul and our body’s true needs through the symptoms our chronic illness throws at us? What happens if instead of fighting against illness we give our bodies what they need to feel safe in an unsafe world? How might our world begin to change when we start tending to the deeper needs of our Souls? How might our super-powers begin to emerge when we start tending to the needs of our Soul as dictated by our body?

Waking the Dead

I sang skin back onto my bones like a blanket’s warm embrace.

Enfolding in acceptance all that I am.

A dream within a dream of much more than simple acceptance.

A celebration really,

where a blanket becomes a robe of the deepest blood red.

Sovereign-earned.

Invoking a blessing of holiness

where that which I formerly condemned is honored as gift.

Where pathology is given a new name signifying magic.

And where illness designates power.

Then I sang a song of amens and hallelujahs!

Copyright Lauri Ann Lumby


Grief

When we are struggling with chronic illness or other debilitating and troublesome symptoms, we are cast into a grieving process. We experience all faces of grief – denial, bargaining, anger, depression, and sorrow as we move in the direction of coming to terms with our symptoms.

For twenty-five years, Lauri Ann Lumby has supported people in all forms of grieving. If you are in need of support in grieving your diagnosis (of often lack thereof), please reach out for an appointment.

Our Kids Are Not Alright – 2022 Edition

In 2016, I penned an article addressing the HUGE issue of teen suicide.  At that writing, 5 of my children’s peers had died by suicide.  Over the years this number jumped to more than 10 and as of this week, we are up to 15 or more!

Our Kids are NOT ALRIGHT!

In my original post (highlights below), I mentioned several contributors to suicide among teens and young adults, along with some ideas for support.  Today, our world has only gotten worse.  Our kids are not alright because

Our world is not alright!

More specifically,

THE UNITED STATES IS NOT ALRIGHT!

We are living in a nation that has been at war with itself over a division that increases every time we find (or someone convinces us there is) something new to fight about. The list is endless:

  • Politics
  • Vaccines
  • Masks
  • Guns
  • Women’s Reproductive Rights.
  • Gender
  • Sex
  • Orientation
  • Race

Add to this a dying economy, a dying republic, the death of democratic process, a dying healthcare system, a long past dead education system (by no fault of the educators), the increasing separation between the haves and the have nots and the decreasing accessibility to meaningful work with a sustainable wage, all while trying to navigate the ever-changing (and volatile) waters of a global pandemic.

No wonder our kids are anxious, panicked, and depressed!

Our kids are not alright, and if we believe they are, we’re fooling ourselves.  I personally have no idea how to respond to the dying world, except to let it die and hope that something better will be coming forth out of the ash.  But our kids deserve so much more than what our world has become.  They also deserve more consideration than what we have been giving them. Is this the kind of world we want to leave our children? Don’t they deserve more than a nation always at war with itself and each other? Don’t they deserve what we once thought of as the “American Dream?”  Can we just for this moment worry less about whether wearing masks are an infringement on our personal freedoms and more about our children and what they might need to feel safe in this very uncertain world?

Lauri Ann Lumby is the mother of two young adults who have seen too many of their peers die by suicide. Lauri is also a professional spiritual counselor to has supported those suffering loss and mentored individuals on the journey of self-actualization since 1995. Lauri can be reached directly via email: lauri@lauriannlumby.com.

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Highlights from 2016 post:

This week, another one of my daughter’s classmates committed suicide.  This young woman is the fifth in a graduating class of 200-some students to commit suicide.  Something here is wrong.  Very wrong…..

The problem, and the reason our kids are not alright is:        Our world.

Our world is a mess.  Our world is a mess for all of us – and for some of us, it is just too much to bear.  Let’s look at the facts:

  1. For as long as our children have been alive, THE WORLD HAS BEEN AT WAR.

If it’s not a conflict or a war with a name, (Desert Storm, Iraqi, Afghanistan, Israel and Palestine, etc. etc. etc.) it is “the war on terrorism.”  And the worst of all the terrorist attacks have been accomplished right here on our own soil by our own U.S. citizens.  The media does not help in this regard by triggering our fears through sensationalism.  As my son said, “Hundreds of people a year are shot in Chicago and no one cares, but as soon as one guy gets shot in Oshkosh, the whole world is in a state of panic.”  (This also points to media and racial bias which is a topic for another blog another day.)

For our children – the world does not feel safe.

  • In the U.S. success is determined by external measurements like money, status, power and fame.  And some of these measurements are literal – how much money you make, how many time you are Tweeted or your Facebook post gets “liked,” if you have your own reality show or not, and do you measure up to the current standards of “beauty.”  For those who do not know their true selves and who have no way of knowing themselves except in comparison to others, success feels like an impossible goal – especially when they look at the TRUTH of our economic situation – which brings me to #3
  • Education does not mean what it used to.  In the old days, a high school education was enough to prepare you for a regular job with a decent rate of pay.  Then, college became the necessary gateway to a career, a paycheck and economic security.  Then, a master’s degree became the gateway, then a PhD.  Now….none of this really matters – and our children know this.  A college degree guarantees you nothing, or as a friend of mine told her daughter, “Do what you love because there won’t be any jobs for you after college anyway.”  Bleak, but true.  As much as politicians are touting the economic recovery and that the “recession is over,” this is not the truth. 
  • The world as we know it is dying.  Our children know this and they know that they will be the ones who will be creating the new world.  For some, this is just too overwhelming a task.  Imagine, for a moment, that you are a player in the Hunger Games and the entire world (as you have known it) crumbles at your feet and you are left with the task of building the new world.  While the endless possibilities and the excitement of building something new is enticing for some, for others, it is overwhelming and feels impossible and they shut down under the burden of the task.
  • And finally….this is the whoo whoo part…..our children are empaths.  What this means is that not only are they feeling their own anxiety in the face of a world that is a mess, they are feeling EVERYONE ELSE’S anxiety.  They feel the anxiety of their parents, their siblings, their classmates, their teachers, and the entire world around them.  When there is a terrorist attack on the other side of the world, they feel it – maybe not consciously, but they feel it.  When a weather system is moving through that will cause people anxiety, they know it – again, maybe not consciously, but they feel it.  For those that don’t understand the gift of empathy and who don’t have tools for managing this gift, the emotions come out sideways – temper tantrums, disproportionate negative behavior, anxiety, depression  – and you guessed it, suicide. 

Which brings me full-circle.  I don’t know what caused that young woman to jump off the bridge into a freezing and raging river to her death.  What I do know is that her death is another wake up call for us as parents, teachers, and other adults. 

Our children need our help. While we cannot change the outside world, there are things we can do to help our children, and in helping them, find help for ourselves in a messy and broken down world:

  1. Lead them to resources to help them manage anxiety.  Resources that have been proven to help manage anxiety include: meditation, mindfulness, regular exercise, a healthy diet, adequate and deep sleep, creativity exercises, being in nature, being with others in healthy community interactions.
  2. Support them in knowing their TRUE selves. Self-knowledge increases self-esteem, confidence, and the ability to be ok with our differences in a world of great diversity. 
  3. Help them develop a different set of values. This starts with us.  We need to stop valuing ourselves in terms of money, fame, status, power, and physical characteristics.  What we are wearing, whose bag we are carrying and what car we are driving DOES NOT MATTER.  These external measurements of “success” or “popularity” do not give us happiness.  In fact, all they do is create more ANXIETY.  If we want our children to be comfortable in a world that will NOT have the resources in which everyone can be a Kardashian, we have to help them find value in the internals – peace, contentment, joy, and fulfillment in knowing and exercising their gifts.  We then need to give them tools for finding this inner peace which leads us back to items 1 and 2. 
  • Support them in their dreams. Our children see and know the new world.  They see a world that is free from the separation with which we have defined the world.  Instead of separation, they see only oneness.  They do not comprehend the separation we keep placing between ourselves and others we view as different from us.  Our children do not see race, religion, sexual orientation, or even gender as barriers, they only see this as the miraculous and amazing diversity among human beings and they seek to know more and to honor these differences.  Let’s get out of the way and let them do this, shall we!?
  • Teach them what to do with Empathy.  This is where the whoo whoo community can help.  Empaths are healers and those with this gift (all of our children) possess this gift because they are here to heal our dying world so that a healthier and happy world can emerge.  Our children need to know what to do with these feelings and how to stop taking responsibility for everyone else’s pain.  Interestingly, this also brings us back to items 1 and 2.

While we cannot change the world, we can change the world in which we are living and the journey starts within.  Let us join together to help our children, and in helping our children, helping ourselves so that we can survive in a world in the midst of change and through our children’s dreams, help to support the birth of a new and better world. Then perhaps these children would not have died in vain.

Authentic Freedom Academy provides empowerment training for those who want to change their world, which starts by changing the world within.